Peripheral Neuropathy Support Groups
Support groups bring together people who share a common health concern or interest. A support group usually focuses on a specific situation or condition, such as peripheral neuropathy. Support groups may be formed by a lay person with the condition or by someone interested in it, such as a family member, or a healthcare professional.
Some groups are educational and structured. For example, the group leader may invite a doctor, psychologist, nurse or social worker to talk about a topic relative to the group’s needs. Other support groups emphasize emotional support and shared experiences.
Have you started a neuropathy support group?
If you have started a neuropathy a support group, please contact us at (847) 883-9942 or [email protected] to share your group’s information so we can include it on our website. Additionally, we invite you to read and/or download the Foundation for Peripheral Neuropathy Support Group Leadership Manual.
Let the Foundation for Peripheral Neuropathy help you publicize your events and share information with patients. Download our guidelines for submitting news and events including deadlines and required information.
Find a neuropathy support group near you.
While not everyone wants or needs support beyond that offered by family and friends, you may find it helpful to turn to others outside your immediate circle for help with management of peripheral neuropathy. A support group can help you cope better and feel less isolated as you make connections with others facing similar challenges. A support group shouldn’t replace your standard medical care, but it can be a valuable resource to help you cope. Below you can search for a support group in your area.
If you do not see a support group near you, you may want to consider joining a virtual (either via Facebook and/or Zoom) support group.
The support group leaders are devoted volunteers who have dedicated their time and resources to support the PN community. Many of our group leaders are willing to provide local resources in their area for people with peripheral neuropathy.
Join a virtual support group
Virtual support groups are a good option if you do not want to travel, or if there isn’t a group in your area.
PERIPHERAL NEUROPATHY RESOURCES ONLINE SUPPORT GROUP
FACEBOOK GROUP: PERIPHERAL NEUROPATHY RESOURCES
ADMINISTRATOR: Cj Holliday – [email protected]
DIRECTORS: Phil Clutts, Barbara Crawford, Barlow Humphries, Joe Korzelik, Diane Mowitz, Deanna Munzert, Jay Selman & Paul Sixta
WEBSITE: peripheralneuropathyresources.com
PODCASTS: https://anchor.fm/deanna-munzert
JOINING A MEETING: This group meets by Zoom; by invitation (provide an email to Cj to receive a Zoom invitation)
MEETING DATES: Second Monday of each month
MEETING TIMES: Open discussion meeting at 3:30 PM ET / 2:30 PM CT / 1:30 PM MT / 12:30 PM PT
CONTACT: [email protected]
PERIPHERAL NEUROPATHY SUCCESS STORIES!
Private Facebook group with a focus on sharing the successes of individuals living with peripheral neuropathy. Over 30,000 members worldwide.
NEUROPATHY CARE SUPPORT GROUP
Private Facebook group committed to helping bring education and knowledge to each person with neuropathy, their families and care takers.
OUR NEUROPATHY FRIENDS
Private Facebook group for those who have peripheral neuropathy.
OUR NEUROPATHY FRIENDS SPOUSES
Private Facebook group for those whose spouse, parent, friend or other loved one has peripheral neuropathy.
Fibromyalgia/ Neuropathy/Chronic Pain Warriors on Long island (Facebook Group)
PERIPHERAL NEUROPATHY SUPPORT NETWORK (WASHINGTON DC AREA)
EXECUTIVE DIRECTOR: Pat Gualtieri – [email protected]
WEBSITE: pnsNetwork.org
FACEBOOK: Private group for questions, information sharing and resources. ON YOUR FEET
WESTERN NEUROPATHY ASSOCIATION
MEETING DATES AND TIMES:
1st Wednesday of every other month, at 4 PM PT / 6 PM CT: Strategies for Singles with Neuropathy; Host: Erika McDannell, [email protected]
2nd Saturday of each month at 11am PT, 1pm CT; Host: Katherine Stenzel, [email protected]
2nd Wednesday of each month: Chemo-Induced Peripheral Neuropathy (CIPN) Support Group at 2 pm PT / 4 pm CT; Host: Glenn Ribotsky, [email protected]
3rd Wednesday of the month; 10 am PT; 12 pm CT; Host: Glenn Ribotsky, [email protected]
3rd Wednesday of the month CIDP & Autoimmune Neuropathy Support Group; 3 pm PT, 5 pm CT; Host: John Phillips, [email protected]
4th Saturday of the month, 11 am PT, 1 pm CT; Host: John Phillips, [email protected]
CONTACT: Katherine Stenzel ([email protected]) for Zoom link
Find your state below:
ALABAMA
Have you started a support group here? Let us know at [email protected].
ALASKA
Have you started a support group here? Let us know at [email protected].
ARIZONA
Scottsdale
HonorHealth Neuropathy Patient Support Group
Kelli Sax Pahl, LCSW
Held at the Bob Bove Neuroscience Institute at HonorHealth, at 7242 E. Osborn Road, Scottsdale.
The meetings take place just off the lobby in the Virginia G. Piper Charitable Trust Conference Center.
Walk-ins are welcome! You do not need to be an HonorHealth patient; anyone who is managing a neurological disorder is welcome to attend.
Fourth Tuesday of each month, except December.
11 a.m. to 12:30 p.m.
For more information, please email [email protected].
ARKANSAS
Have you started a support group here? Let us know at [email protected].
CALIFORNIA
Auburn
Sharlene McCord (530) 878-8392
Kathy Clemens (916) 580-9449, [email protected]
Name of Group: Western Neuropathy Association Auburn Support Group
Meeting Place: Woodside Village Mobile Home Park, 12155 Luther Road
Meeting Date and Time: First Monday of the month at 11 am PT
(no meetings in the summer)
Santa Cruz area
Mary Ann Leer (831) 477-1239
Name of Group: Western Neuropathy Association Santa Cruz Support Group
Meets the 2nd Wednesday of the month.
1:00 – 2:30 pm PT
Trinity Presbyterian Church, 420 Melrose Avenue, Santa Cruz, CA
COLORADO
Colorado Neuropathy Group: https://www.meetup.com/colorado-online-neuropathy-support-and-education/
Contact: Jenny Fraser via their meet up web site
CONNECTICUT
Darien
Brian McKay
Tel: 203-875-0846
Email: [email protected]
Messages and announcements:
Name of group: Fairfield County Neuropathy Nerve Pain Support Group
Meeting place: 551 Post Road, Suite 2b, Darien, CT
Time: 1st Saturday of the month at noon
Waterford
Linda J. McIntosh
Email: [email protected]
Phone: 860-460-6445—please leave a message and you will receive a return call with information
Messages and announcements:
No longer having meetings, but is available over the phone.
West Hartford
Cynthia Colton-Reichler (860) 543-9580
[email protected]
Messages and announcements:
Name of Group: Neuropathy Connections
Meets the 4th Sunday of the month from 7 – 8 p.m.
The Universalist Church of West Hartford, 433 Fern St, West Hartford, CT
DELAWARE
Have you started a support group here? Let us know at [email protected].
DISTRICT OF COLUMBIA (DC)
Pat Gualtieri
Email: [email protected]
Messages and announcements:
Name of group: Peripheral Neuropathy Support Group of DC/VA
Time: 1st Saturday of each month from 2:00 – 4:00 p.m.
Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. For more information or to be added to the mailing list, go to pnsNetwork.org and click on JOIN. Facebook group: ON YOUR FEET
FLORIDA
Jacksonville
Alan Berger, MD
Karen Perrin, RN
TEL: 904-244-9719
Email: [email protected]
Messages and announcements:
Name of group: Jacksonville PN Support Group
Meeting place: U.S. Health Jacksonville
Address: 580 W. 8th Street, Tower #2, 10th Floor, Jacksonville, FL 32209
Time: 2nd Saturday of every month from 10:00 to 11:30 a.m. (signs will be posted inside entrance with conference room location).
Tampa
Cindy Tofthagen, PhD, ARNP, AOCNP, FAANP, FAAN
TEL: 904-953-1409
Email: [email protected]
Messages and announcements:
Name of group: Peripheral Neuropathy Support Group
Location: virtual support group via Zoom conferencing, contact Cindy for phone-in or log-in instructions.
Group meets in-person periodically for social gatherings
Time: 1st Monday of every month from 1:00 to 2:00 p.m. ET
GEORGIA
Have you started a support group here? Let us know at [email protected].
IDAHO
Have you started a support group here? Let us know at [email protected].
ILLINOIS
Chicago
Rev. Angel K. Mason
Tel: 872-203-5932
Email: [email protected]
Website: https://ihurtchronicpain.com/
Messages and announcements:
Name of group: Chicago Chronic Pain Group
Meeting place: Swedish Medical Center, Anderson Pavilion, Titus Johnson Room
Address: 2751 W. Winona St., Chicago, IL 60625
NOTE: Currently meets second and fourth Wednesday of each month from 6-8 p.m. CT. For more information, contact Rev Angel Mason at [email protected] to sign up.
INDIANA
Indianapolis
Meg L. Frazer, M.D.
Tel: 317-844-2903
Email: [email protected]
Messages and announcements:
Name of group: Central Indiana Neuropathy And Chronic Pain Support Group
FORMER meeting place: St. Luke’s United Methodist Church
FORMER Address: 100 West 86th Street, Indianapolis, IN 46260
Time: 3rd Monday of every month from 6:30 – 8:00 p.m. CT
NOTE: Currently group meets via Zoom the third Monday of each month 6:30 – 8:00 pm CT. For more information contact [email protected].
IOWA
Have you started a support group here? Let us know at [email protected].
KANSAS
Have you started a support group here? Let us know at [email protected].
KENTUCKY
Have you started a support group here? Let us know at [email protected].
LOUISIANA
Have you started a support group here? Let us know at [email protected].
MAINE
Have you started a support group here? Let us know at [email protected].
MARYLAND
Montgomery County (Bethesda/Chevy Chase)
Steve Klitzman
Email: [email protected]
Messages and announcements:
Name of group: Bethesda/Chevy Chase PN Support Group
Time: Third Thursday of the month at 7:00 pm
Monthly Zoom-based support group.
For further information, please contact Group Leader, Steve Klitzman at [email protected]. M: 202-277-9509, H: 301-312-6557. From 2010-21, Steve was the Group Leader of the only other public PN support group in the entire DMV area, the PN Support Group of Metro DC.
Peripheral Neuropathy Support Group of Riderwood Retirement Village
Silver Spring, MD
Co-Chairpersons: James David and Almeda Girod
Contact: [email protected] or 301-273-9376
[email protected] or 301-288-4458
This group serves the residents of Riderwood Retirement Village in Silver Spring, MD. To join their group, please reach out to James David or Almeda Girod. The group meets the 4th Wednesday of every month at 3:30 pm in the Chesapeake Room in Montgomery Station, Riderwood Retirement Village.
MASSACHUSETTS
Orleans
Kristina Meservey
TEL: 774-207-0153 or 860-912-3111
Email: [email protected]
Messages and announcements:
Name of group: Cape and Islands Neuropathy Support Group
Group presently suspended due to lack of meeting space. Kristina Meservey is available to suggest resources by phone.
Weston
Leslie MacGregor (leader)
TEL: 781-786-6280
Email: [email protected]
Messages and announcements:
Name of group: Metrowest Boston Neuropathy Support Group
Old meeting place: Weston Community Center / Council on Aging
Address: 20 Alphabet Lane, Weston, MA 02493
Note: The group meets on the 3rd Thursday 1:00 -3:00 pm ET via Zoom September – June. Contact Leslie MacGregor at [email protected].
MICHIGAN
Have you started a support group here? Let us know at [email protected].
MINNESOTA
Duluth
Scott Smith
TEL: 218-476-3277 home
612-267-3658 cell
Email: [email protected]
Hibbing/Iron Range
Scott Smith
TEL: 218-476-3277 home
612-267-3658 cell
Email: [email protected]
MISSOURI
Have you started a support group here? Let us know at [email protected].
MONTANA
Have you started a support group here? Let us know at [email protected].
NEBRASKA
Have you started a support group here? Let us know at [email protected].
NEVADA
Group is no longer meeting, but group leader still manages a Facebook page and information list: Neuropathy Care Support Group
Contact Barbara Montgomery at [email protected].
NEW HAMPSHIRE
Have you started a support group here? Let us know at [email protected].
NEW JERSEY
Dean S. Lewis
TEL: 516-448-0833 (TEXT only)
Email: [email protected]
Mary Robertson
TEL: 973-226-1535
Email: [email protected]
Messages and announcements:
Name of group: Northern and West Essex Peripheral Neuropathy Support Group
Meets 3rd Thursdays in Mar, April, May, Sept, Oct, and Nov. 7 – 8:15 p.m. ET. Virtual meetings currently via Zoom.
Fanwood
Fontaine Gatti
Email: [email protected]
Messages and announcements:
Name of group: Union County Support Group
NEW MEXICO
Have you started a support group here? Let us know at [email protected].
NEW YORK
Manhattan
Steven Smith
TEL: 914-310-0490
Email: [email protected]
Messages and announcements:
Name of group: The Manhattan PN Support Group
Meeting place: CBS Building
Address: 51 W. 52nd Street, New York, NY – ask doorman for conference room
Time: 3rd Thursday of every month from 6:00 to 8:00 p.m.
Great Neck
Joseph Malkevitch (Leader)
TEL: 516-746-3780
Email: [email protected]
Web page: http://york.cuny.edu/~malk/neuropathy.html
Messages and announcements:
Name of group: Long Island Neuropathy Support Group
Meeting place: North Shore University Hospital
Currently this support group is not active.
Long Island
GROUP NAME: Fibromyalgia/ Neuropathy/Chronic Pain Warriors on Long island (Facebook Group)
www.facebook.com/groups/chronicpainwarriorsofLI
NORTH CAROLINA
Have you started a support group here? Let us know at [email protected].
NORTH DAKOTA
Have you started a support group here? Let us know at [email protected].
OHIO
Northeast Ohio
David Perk
Tel: 216-383-1111
Messages and announcements: serving all of Northeast Ohio including Cleveland, Akron, Macedonia
Name of group: Northeast Ohio PN Support Group
Meeting place: Good Shepherd Christian Church
Address: 9571 Shepard Road, Macedonia, OH 44056
Time: 2nd Tuesday of every month from 1:30 – 2:30 p.m.
OKLAHOMA
Have you started a support group here? Let us know at [email protected].
OREGON
Have you started a support group here? Let us know at [email protected].
PENNSYLVANIA
Pittsburgh Area
Bill Wilshire
TEL: 724-515-7662
Email: [email protected]
Messages and announcements:
Name of group: Pittsburgh Area Neuropathy Support Group
FORMER Meeting place: Brushcreek Lutheran Church (downstairs)
FORMER Address: 177 Brushcreek Road, Irwin, PA 15642
Time: 3rd Wednesday of the month (April through October) from 6 to 8 p.m.
NOTE: Currently group Meets 3rd Weds April-October. Hybrid meetings: some via Zoom, thinking of starting in person. Contact Bill Wilshire at [email protected].
Kennett Square
Kendal-Crosslands Peripheral Neuropathy Support Group
NOTE: This group is currently limited to the residents of the Kendal-Crosslands community. Residents should reach out to Barlow Humphreys.
RHODE ISLAND
Want to get one started? Contact [email protected].
SOUTH CAROLINA
Have you started a support group here? Let us know at [email protected].
SOUTH DAKOTA
Have you started a support group here? Let us know at [email protected].
TENNESSEE
Have you started a support group here? Let us know at [email protected].
TEXAS
Houston
Katherine Stenzel
[email protected]
Name of Group: Western Neuropathy Association Houston Support Group
Meeting Place: Memorial Drive United Methodist Church, 12955 Memorial Drive
Room DS100, enter from the back (south) of the building
Meeting Date: Meets the first Saturday of March, June, September and December at 1 pm CT
Contact: Katherine Stenzel at [email protected]
Tai Chi Classes for Neuropathy in Central Texas
Southwest Austin
Thursday mornings 10 – 11 a.m.
Location TBD
Please contact Linda Gibson at [email protected] for more information and to register.
Georgetown
If you are interested in joining a Tai Chi class in Georgetown, please email Norm Gill at [email protected].
VIRGINIA
DC Area
Pat Gualtieri
Email: [email protected]
Messages and announcements:
Name of group: Peripheral Neuropathy Support Group of DC/VA
Time: 1st Saturday of each month from 2:00 – 4:00 p.m.
Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. For more information or to be added to the mailing list, go to pnsNetwork.org and click on JOIN. Facebook group: ON YOUR FEET
WASHINGTON
Have you started a support group here? Let us know at [email protected].
WASHINGTON, DC
Pat Gualtieri
Email: [email protected]
Messages and announcements:
Name of group: Peripheral Neuropathy Support Group of DC/VA
Time: 1st Saturday of each month from 2:00 – 4:00 p.m.
Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. “For more information or to be added to the mailing list, go to pnsNetwork.org and click on JOIN. Facebook group: ON YOUR FEET
WEST VIRGINIA
Have you started a support group here? Let us know at [email protected].
WISCONSIN
Have you started a support group here? Let us know at [email protected].
WYOMING
Have you started a support group here? Let us know at [email protected].
Calgary (Alberta)
Linda Petiot
Tel: 403-668-9777 (leave a message)
Email: [email protected]
Website: CalgaryNeuropathy.com
Group Name: Calgary Neuropathy Association (CNA)
Meet Times: The CNA meet times and locations are best found on the website and dates and times may change due to guest speaker or facilitator needs.
All are welcome from anywhere as we meet via ZOOM, registration is required.
Ontario
Note: A Support Group is not available at this location, but our Local PN Resources have offered to answer questions from patients with peripheral neuropathy:
Glenn Rogers
Email: [email protected]
Messages and announcements:
Support group permanently suspended. Please email for more information.