Peripheral neuropathy support groups
Support groups bring people with peripheral neuropathy (PN) and those affected by the condition together. Some groups are educational and structured, bringing in experts to talk about topics. Other groups emphasize emotional support and shared experiences.
Have your own support group?
If you’ve started a support group, please let us know so we can include it on our website. We also invite you to read our leadership manual.
Let us help you publicize your PN event and share information with patients. Download our guidelines for submitting news and events.
Join a virtual support group
Virtual support groups are a good option if you do not want to travel, or if there isn’t a group in your area.
Peripheral Neuropathy Resources Facebook Group
We are the only online peripheral neuropathy (P-N) discussion group meeting every month for people with P-N and/or their caregivers.
Administer: CJ Holliday – [email protected]
Directors: Phil Clutts, Barbara Crawford, Barlow Humphries, Joe Korzelik, Diane Mowitz, Deanna Munzert, Jay Selman & Paul Sixta
Podcasts: https://anchor.fm/deanna-munzert
Meetings are the second Monday of each month (at 3:30 PM ET / 2:30 PM CT / 1:30 PM MT / 12:30 PM PT) Contact CJ for the meeting invite.
Peripheral Neuropathy Success Stories!
Private Facebook group with a focus on sharing the successes of individuals living with peripheral neuropathy. Over 30,000 members worldwide.
Neuropathy Care Support Group
Private Facebook group committed to helping bring education and knowledge to each person with neuropathy, their families and care takers.
Our Neuropathy Friends
Private Facebook group for those who have peripheral neuropathy.
One Neuropathy Friends Spouses
Private Facebook group for those whose spouse, parent, friend or other loved one has peripheral neuropathy.
Fibromyalgia/ Neuropathy/Chronic Pain Warriors on Long island
This is a group for anyone on Long Island ( Suffolk or Nassau County ) whom suffers from fibromyalgia / Neuropathy and other chronic pain conditions as well as friends and families of those who have been touched by this condition.
Neuropathy Care Support Group (Washington DC Area)
Private Facebook group committed to helping bring education and knowledge to each person with neuropathy, their families and care takers.
Western Neuropathy Association (WNA)
Meeting Dates and Times:
- 1st Wednesday of every other month, at 4 PM PT / 6 PM CT: Strategies for Singles with Neuropathy; Host: Erika McDannell, [email protected]
- 2nd Saturday of each month at 11am PT, 1pm CT; Host: Katherine Stenzel, [email protected]
- 2nd Wednesday of each month: Chemo-Induced Peripheral Neuropathy (CIPN) Support Group at 2 pm PT / 4 pm CT; Host: Glenn Ribotsky, [email protected]
- 3rd Wednesday of the month; 10 am PT; 12 pm CT; Host: Glenn Ribotsky, [email protected]
- 3rd Wednesday of the month CIDP & Autoimmune Neuropathy Support Group; 3 pm PT, 5 pm CT; Host: John Phillips, [email protected]
- 4th Saturday of the month, 11 am PT, 1 pm CT; Host: John Phillips, [email protected]
Contact: Katherine Stenzel ([email protected]) for Zoom link
Have you started a support group not listed below? Let us know.
[email protected]Montgomery County, MD
Bethesda/Chevy Chase PN Support Group
Date and Time
Third Thursday of the month at 7:00 pm
Monthly Zoom-based support group.
Contact
Details
For further information, please contact Group Leader, Steve Klitzman. From 2010-21.
Steve was the Group Leader of the only other public PN support group in the entire DMV area, the PN Support Group of Metro DC.
Canada
Calgary Neuropathy Association (CNA)
Address
Calgary, AlbertaCanada
Date and Time
The CNA meet times and locations are best found on the website and dates and times may change due to guest speaker or facilitator needs.
Contact
Details
All are welcome from anywhere as we meet via ZOOM, registration is required.
Orleans, MA
Cape and Islands Neuropathy Support Group
Contact
Details
Group presently suspended due to lack of meeting space. Kristina Meservey is available to suggest resources by phone.
Indianapolis, IN
Central Indiana Neuropathy And Chronic Pain Support Group
Date and Time
3rd Monday of every month from 6:30 – 8:00 p.m. CT
Contact
Details
NOTE: Currently group meets via Zoom the third Monday of each month 6:30 – 8:00 pm CT. For more information contact Meg.
Chicago, IL
Chicago Chronic Pain Group
Address
Swedish Medical Center, Anderson Pavilion, Titus Johnson Room2751 w. Winona st
Chicago, IL 60625
Date and Time
Currently meets second and fourth Wednesday of each month from 6-8 p.m. CT. For more information, contact Rev Angel Mason.
Contact
Details
Website: https://ihurtchronicpain.com/
Loveland, AL
Colorado Neuropathy Group
Contact
Jenny Fraser (Contact via website)
Darien, CT
Fairfield County Neuropathy Nerve Pain Support Group
Date and Time
1st Saturday of the month at noon
Contact
Hibbing/Iron Range, MN
Hibbing/Iron Range
Contact
Scottsdale, AZ
HonorHealth Neuropathy Patient Support Group
Date and Time
Fourth Tuesday of each month, except December, 11 a.m. to 12:30 p.m.
Contact
Kelli Sax Pahl, LCSW
[email protected]Details
The meetings take place just off the lobby in the Virginia G. Piper Charitable Trust Conference Center.
Walk-ins are welcome! You do not need to be an HonorHealth patient; anyone who is managing a neurological disorder is welcome to attend.
Jacksonville, FL
Jacksonville PN Support Group
Date and Time
2nd Saturday of every month from 10:00 to 11:30 a.m. (signs will be posted inside entrance with conference room location)
Contacts
Kendal-Crosslands, PA
Kendal-Crosslands Peripheral Neuropathy Support Group
Details
NOTE: This group is currently limited to the residents of the Kendal-Crosslands community. Residents should reach out to Barlow Humphreys.
Great Neck, NJ
Long Island Neuropathy Support Group
Contact
Joseph Malkevitch
[email protected]Details
Website: http://york.cuny.edu/~malk/neuropathy.html
Currently this support group is not active.
Weston, MA
Metrowest Boston Neuropathy Support Group
Date and Time
The group meets on the 3rd Thursday 1:00 -3:00 pm ET via Zoom September – June.
Contact
Details
Contact Leslie MacGregor.
West Hartford, CT
Neuropathy Connections
Date and Time
4th Sunday of the month from 7 – 8 p.m.
Contact
Macedonia, OH
Northeast Ohio PN Support Group
Date and Time
2nd Tuesday of every month from 1:30 – 2:30 p.m.
Contact
David Perk
216-383-1111
Details
Serving all of Northeast Ohio including Cleveland, Akron, Macedonia
All Cities, NJ
Northern and West Essex Peripheral Neuropathy Support Group
Date and Time
Meets 3rd Thursdays in Mar, April, May, Sept, Oct, and Nov. 7 – 8:15 p.m. ET.
Contacts
Dean S. Lewis
516-448-0833 (Text only)
[email protected]Mary Robertson
973-226-1535
[email protected]Details
Virtual meetings currently via Zoom.
Canada
Ontario
Address
OntarioCanada
Date and Time
Support group permanently suspended. Please email for more information.
Contact
Glenn Rogers
[email protected]Details
A Support Group is not available at this location, but our Local PN Resources have offered to answer questions from patients with peripheral neuropathy:
Tampa, FL
Peripheral Neuropathy Support Group
Date and Time
1st Monday of every month from 1:00 to 2:00 p.m. ET
Contact
Cindy Tofthagen, PhD, ARNP, AOCNP, FAANP, FAAN
904-953-1409
Details
Cirtual support group via Zoom conferencing.Contact Cindy for phone-in or log-in instructions.
Group meets in-person periodically for social gatherings
DC Metro, DC
Peripheral Neuropathy Support Group of DC/VA
Date and Time
1st Saturday of each month from 2:00 – 4:00 p.m.
Contact
Pat Gualtieri
[email protected]Details
Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. For more information or to be added to the mailing list, go to pnsNetwork.org and click on JOIN. Facebook group: ON YOUR FEET
Statewide, MD
Peripheral Neuropathy Support Group of DC/VA
Date and Time
1st Saturday of each month from 2:00 – 4:00 p.m.
Contact
Pat Gualtieri
[email protected]Details
Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. For more information or to be added to the mailing list, go to pnsNetwork.org and click on JOIN. Facebook group: ON YOUR FEET
Statewide, VA
Peripheral Neuropathy Support Group of DC/VA
Date and Time
1st Saturday of each month from 2:00 – 4:00 p.m.
Contact
Pat Gualtieri
[email protected]Details
Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. For more information or to be added to the mailing list, go to pnsNetwork.org and click on JOIN. Facebook group: ON YOUR FEET
Silver Spring, MD
Peripheral Neuropathy Support Group of Riderwood Retirement Village
Date and Time
The group meets the 4th Wednesday of every month at 3:30 pm in the Chesapeake Room in Montgomery Station, Riderwood Retirement Village.
Contacts
Details
To join their group, please reach out to James David or Almeda Girod.
Irwin, PA
Pittsburgh Area Neuropathy Support Group
Date and Time
3rd Wednesday of the month (April through October) from 6 to 8 p.m.
Contact
Details
Currently group Meets 3rd Weds April-October.
Hybrid meetings: some via Zoom, thinking of starting in person. Contact Bill Wilshire.
Georgetown, TX
Tai Chi Classes for Neuropathy in Central Texas – Georgetown
Contact
Norm Gill
[email protected]Details
If you are interested in joining a Tai Chi class in Georgetown, please email Norm Gill at [email protected].
TBD, TX
Tai Chi Classes for Neuropathy in Central Texas – Southwest Austin
Contact
Linda Gibson
[email protected]Details
Please contact Linda Gibson at [email protected] for more information and to register.
New York, NY
The Manhattan PN Support Group
Date and Time
3rd Thursday of every month from 6:00 to 8:00 p.m.
Contact
Waterford, CT
Waterford
Contact
Details
Messages and announcements:
No longer having meetings, but is available over the phone.
Auburn, CA
Western Neuropathy Association Auburn Support Group
Date and Time
First Monday of the month at 11 am PT
(no meetings in the summer)
Contacts
Houston, TX
Western Neuropathy Association Houston Support Group
Date and Time
Meets the first Saturday of March, June, September and December at 1 pm CT
Contact
Katherine Stenzel
Santa Cruz, CA
Western Neuropathy Association Santa Cruz Support Group
Date and Time
2nd Wednesday of the month, 1:00 – 2:30 pm PT
Contact
Mary Ann Leer
(831) 477-1239
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