IMAGiNe Study
Home IMAGiNe Study
The IMAGiNe Study (Immunoglobulin M(IgM)-Anti-myelin-associated-glycoprotein (MAG) Peripheral Neuropathy Study) aims to create a standardized database and biobank to be used for the research and analysis of Anti-MAG peripheral neuropathy. The goal is to be able to identify and predict the disease progression and treatment response, drawing on the information and DNA collected from the biobank and patient database. The hope is that researchers will be able to determine cause and treatments for sufferers of the disease.
Anti-MAG peripheral neuropathy is a form of peripheral neuropathy caused by a rare autoimmune condition. With this type of peripheral neuropathy, a patient’s immune system attacks cells that are vital in maintaining a healthy peripheral nervous system. As these cells are destroyed by antibodies, they lose function and impact sensory and motor functions. More information on this condition can be found on the FPN website.
The global experts behind the IMAGiNe study hope to fill a major gap in medical research on “anti-MAG” through this study. We all hope this leads to better understanding of the condition and new treatments that improve the lives of patients living with “anti-MAG.”
For general information about the IMAGiNe study, please email [email protected].
Participants must meet all qualifying criteria, including having been diagnosed with anti-MAG peripheral neuropathy, and be able to travel to a participating site for an initial evaluation and follow-up study visits.
We are excited to partner with the following institutions to fund this all-important research program. If you would like to learn more about participating and/or enrolling as a patient at one of the sites, please use the contact information below.
Partnering Institutions
Simone Thomas
Principal Investigator
(410) 614-4188
601 N. Caroline Street
5th Floor
Baltimore, MD 21287
Amro Stino, MD
Principal Investigator
(734) 936-9010
Department of Neurology
1500 E. Medical Center Drive
1914 Taubman Center SPC 5316
Ann Arbor, MI 48109-5316
Dr. Luis Querol
Principal Investigator
Unidad de Enfermedades Neuromusculares
Servicio de Neurología
Hospital Santa Creu i Sant Pau
Carrer del Mas Casanovas, 90
08041 - Barcelona
Spain
Phone: +34 935 53 78 01
Principal Investigator
78 Rue du Général Leclerc
94270 Le Kremlin-Bicêtre
France
Phone: +33 1 45 21 21 21
Clinical Center of Serbia
Dr. Stojan Peric
Principal Investigator
Pasterova 2
Beograd 11000
Serbia
Phone: +381 11 3609999
Eduardo Nobile Orazio
Principal investigator
Via Alessandro Manzoni
56
20089 Rozzano MI
Italy
Phone: +39 02 82241
Juliette Svahn
Principal Investigator
3 Quai des Célestins
69002 Lyon
France
Phone: +33 825 08 25 69
Aarhus University Hospital
Thomas Harbo
Principal Investigator
Palle Juul-Jensens Blvd 161
8200 Aarhus
Denmark
Phone: +45 70 11 31 31
St Bartholomew's Hospital
Stephen Keddie
Principal Investigator
W Smithfield
London
EC1A 7BE
United Kingdom
[email protected]
From Our Blog...
FPN Funds IMAGiNe Study for anti-MAG Research
Through the generosity of our donors, the Foundation for Peripheral Neuropathy (FPN) was able to support the IMAGiNe study with a $165,000 research grant to fund new patient
TREATING ANTI-MAG PN – A LOOK BACK AND WHAT MAY BE COMING
Introduction to Anti-MAG Neuropathy Anti-MAG neuropathy refers to a rare auto-immune associated cause of peripheral neuropathy (PN). In this case, the person’s own immune system
Study Protocol on IgM Anti-Mag Neuropathy Released
The Foundation for Peripheral Neuropathy (FPN) is pleased that the IMAGiNe study protocol has been approved for publication in the Journal of the Peripheral Nervous
FPN Funding Contributes $90,000 to IMAGiNe Study for anti-MAG Research
Through the generosity of our donors, we’re able to support the IMAGiNe study with a $150,000 research grant to fund new patient enrollment. $90,000 of
Anti-MAG Peripheral Neuropathy: Q&A
Anti-MAG peripheral neuropathy (Immunoglobulin M(IgM) Anti-Myelin Associated Glycoprotein Peripheral Neuropathy) is a rare autoimmune variety of peripheral neuropathy. In this type of PN, a person’s
CLINICAL HIGHLIGHTS: PNS Meeting 2022
The Peripheral Nerve Society Annual Meeting was held in Miami in May 2022. The Foundation for Peripheral Neuropathy is pleased to be able to provide