Stories

Living with Peripheral Neuropathy: A 30-Year Journey of Challenges and Hope

Meet Jason B., a husband, father, supporter of FPN, and an SFN patient, as he shares his journey living with peripheral neuropathy. January 2, 1994, 24 years old, a recent college grad. I was flying from San Francisco to home in San Diego when I felt an unusual, cold yet burning sensation in my legs. …

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Chris advocates for peripheral neuropathy awareness

Chris F. is a resilient and dedicated individual residing in Madison, Wisconsin. Chris has led a remarkable life marked by a thriving business career and a strong commitment to family. Over three decades, he navigated the complexities of entrepreneurship, describing it as an exhilarating journey filled with challenges and triumphs. With 48 years of marriage …

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How a PN patient maintains hope

Meet Jeff K., an FPN supporter and volunteer, recent retiree, and resident of West Hartford, CT Jeff K. was diagnosed with peripheral neuropathy (PN) nine years ago, with noticeable issues emerging in the last two years. The initial diagnosis followed back surgery, and his neurosurgeon at Mass General in Boston referred him to a neurologist …

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Persistence

Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management, showcasing persistence in the face of adversity. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known …

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Coping with Chronic Pain

Coping with Chronic Pain

My name is Brooke Gottesman. As a licensed clinical social worker (LCSW) working in mental health since 2004, I am currently in part-time private practice in NY with a specialization in cognitive behavioral therapy (CBT). My practice focuses on patients managing chronic pain. Writing this article is an opportunity to share my story of chronic …

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What Nerve!

At 98, Gloria Potter shares her peripheral neuropathy journey. “What nerve!” We have heard that exclaimed over the years, but the meaning was only one of outrage and the actual nerve cells were not considered. Those of us with peripheral neuropathy may well have the outrage because we are experiencing a thoroughly outrageous condition. As …

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