Meet Jason B., a husband, father, supporter of FPN, and an SFN patient, as he shares his journey living with peripheral neuropathy. January 2, 1994, 24 years old, a recent college grad. I was flying from San Francisco to home in San Diego when I felt an unusual, cold yet burning sensation in my legs. …
Living with Peripheral Neuropathy: A 30-Year Journey of Challenges and Hope Read More »
Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management, showcasing persistence in the face of adversity. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known …
My name is Brooke Gottesman. As a licensed clinical social worker (LCSW) working in mental health since 2004, I am currently in part-time private practice in NY with a specialization in cognitive behavioral therapy (CBT). My practice focuses on patients managing chronic pain. Writing this article is an opportunity to share my story of chronic …
Meet Margot Marsh; she has been through a lot over the years. She moved many times over her lifetime, mostly for other people. She has been married and divorced, raised children, restarted a career and dealt with long-term chronic pain from peripheral neuropathy. But she will be the first to tell you, if she has …
Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute …
Best-selling author of “The End of Your Life Book Club” and FPN friend, Will Schwalbe, has written a new book, “We Should Not Be Friends.” Chronicling a forty-year improbable, life-changing friendship, this warm, funny, irresistible book also explores Schwalbe’s experience with small fiber neuropathy. “We Should Not Be Friends is as funny, warm, brutally honest …
Book Fundraiser to Benefit FPN: Order by Feb. 21 Read More »
Paula Barreras, MD, neuroimmunology fellow at Johns Hopkins Hospital and Erika Williams, MD, PhD, neuromuscular fellow at Massachusetts General Brigham are receiving the inaugural Clinical Research Training Scholarships (CRTS). Through these awards, FPN is providing $300,000 in peripheral neuropathy (PN) research funding. Identifying Biomarkers and Pathogenic Mechanisms in Sarcoidosis-Associated Small Fiber Neuropathy Barreras will study …
Inaugural Clinical Research Training Scholarship Recipients Announced Read More »
The Foundation for Peripheral Neuropathy is pleased to welcome its newest Board Director, Dr. Gregory Maassen, PhD, effective January 1, 2023. About Dr. Gregory Maassen Dr. Gregory Maassen is a multimedia, strategic digital marketing, videographer, and (interim) manager. He has over 23 years of experience. This includes 18 years of senior management experience with the …
Small fiber neuropathy (SFN) is a common, yet underappreciated, subclass of peripheral neuropathy. While SFN shares many features with large fiber neuropathy, it has unique aspects in its evaluation and management that warrant particular attention. Q&A with Amro Stino, MD On July 11, 2022, the Foundation for Peripheral Neuropathy (FPN) welcomed Amro Stino, MD, from …
I’m writing this essay for a couple of reasons: as a way to bring more awareness to small fiber neuropathy (SFN) and explain its toll on me personally. The symptoms of small fiber neuropathy vary greatly person to person. But for me, it is chronic pain. I’ve been in pain ever since I can remember. …
Dana’s Story: My Personal Journey with Small Fiber Neuropathy Read More »
