Best-selling author of “The End of Your Life Book Club” and FPN friend, Will Schwalbe, has written a new book, “We Should Not Be Friends.” Chronicling a forty-year improbable, life-changing friendship, this warm, funny, irresistible book also explores Schwalbe’s experience with small fiber neuropathy. “We Should Not Be Friends is as funny, warm, brutally honest …
Book Fundraiser to Benefit FPN: Order by Feb. 21 Read More »
Paula Barreras, MD, neuroimmunology fellow at Johns Hopkins Hospital and Erika Williams, MD, PhD, neuromuscular fellow at Massachusetts General Brigham are receiving the inaugural Clinical Research Training Scholarships (CRTS). Through these awards, FPN is providing $300,000 in peripheral neuropathy (PN) research funding. Identifying Biomarkers and Pathogenic Mechanisms in Sarcoidosis-Associated Small Fiber Neuropathy Barreras will study …
Inaugural Clinical Research Training Scholarship Recipients Announced Read More »
The Foundation for Peripheral Neuropathy is pleased to welcome its newest Board Director, Dr. Gregory Maassen, PhD, effective January 1, 2023. About Dr. Gregory Maassen Dr. Gregory Maassen is a multimedia, strategic digital marketing, videographer, and (interim) manager. He has over 23 years of experience. This includes 18 years of senior management experience with the …
In 2020, the peripheral neuropathy (PN) research community achieved a huge breakthrough. For the first time, Congress included “peripheral neuropathy” as an eligible condition for study in the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP). This secured more than $8 million in grants for peripheral neuropathy research in fiscal year 2021. Our …
Through the generosity of our donors, we’re able to support the IMAGiNe study with a $150,000 research grant to fund new patient enrollment. $90,000 of these funds, spent in 2022, resulted in over 150 new patients enrolling in the study. The IMAGiNe Study The IMAGiNe study is an international research collaborative focused on patients with …
FPN Funding Contributes $90,000 to IMAGiNe Study for anti-MAG Research Read More »
Hereditary neuropathies refer to a group of nerve disorders that lead to weakness and wasting of the muscles generally below the knees, and in the hands, and that may be passed from parents to children. For several of these conditions, the genetic defect is known, and tests are available for diagnosis and prenatal counseling. Q&A …
The Foundation for Peripheral Neuropathy (FPN) is delighted to announce that Sandra Rieger, PhD, has joined the Foundation’s Scientific Advisory Board (SAB). The SAB advises both the Board of Directors and staff of the Foundation in areas of science and technology relevant to peripheral neuropathy and its research. Dr. Sandra Rieger earned a Ph.D. in Developmental …
Diabetic peripheral neuropathy (DPN), or nerve damage caused by diabetes, is one of the most known causes of neuropathy. DPN can be a common complication that affects the extremities and normally presents itself as a loss of sensation, most often described as numbness and tingling. Symptoms of DPN can also cause debilitating pain which is …
Speak For Your Feet Contest for Diabetic Peripheral Neuropathy Read More »
Small fiber neuropathy (SFN) is a common, yet underappreciated, subclass of peripheral neuropathy. While SFN shares many features with large fiber neuropathy, it has unique aspects in its evaluation and management that warrant particular attention. Q&A with Amro Stino, MD On July 11, 2022, the Foundation for Peripheral Neuropathy (FPN) welcomed Amro Stino, MD, from …
I’m writing this essay for a couple of reasons: as a way to bring more awareness to small fiber neuropathy (SFN) and explain its toll on me personally. The symptoms of small fiber neuropathy vary greatly person to person. But for me, it is chronic pain. I’ve been in pain ever since I can remember. …
Dana’s Story: My Personal Journey with Small Fiber Neuropathy Read More »
