At 98, Gloria Potter shares her peripheral neuropathy journey. “What nerve!” We have heard that exclaimed over the years, but the meaning was only one of outrage and the actual nerve cells were not considered. Those of us with peripheral neuropathy may well have the outrage because we are experiencing a thoroughly outrageous condition. As …
The Foundation for Peripheral Neuropathy (FPN) is pleased that the IMAGiNe study protocol has been approved for publication in the Journal of the Peripheral Nervous System. The focus of this international study is a rare autoimmune cause of PN. It is identified by high levels of the IgM protein in the blood of affected patients, …
Study Protocol on IgM Anti-Mag Neuropathy Released Read More »
Meet Margot Marsh; she has been through a lot over the years. She moved many times over her lifetime, mostly for other people. She has been married and divorced, raised children, restarted a career and dealt with long-term chronic pain from peripheral neuropathy. But she will be the first to tell you, if she has …
Peripheral Neuropathy Awareness Week 2023 is almost here! Peripheral Neuropathy (PN) Awareness Week is an annual event, occurring the first full week in May. This year, we are spreading awareness for this devastating condition during a week-long campaign that’s running from May 7 through May 13. We use the week to spread awareness of PN …
The Foundation for Peripheral Neuropathy (FPN) is growing. As we serve more of the PN community than ever before, we are responding to its needs with more. In 2023, we’re doing more work to advance awareness, education, advocacy, and research with: These are just a few examples of our growing commitment to more. This increased …
Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare disease where the body’s natural defenses, like antibodies, attack the covering of the nerves, called myelin, and damage nerve function. While symptoms aren’t the same for everyone, CIDP can make your arms and legs feel weak and slow your movements. The purpose of the ARISE Study is …
The Foundation for Peripheral Neuropathy and the Department of Defense Peer-Reviewed Medical Research Program Co-Host March 8, 2023, Webinar About Award Pre-Applications CHICAGO, Feb. 28, 2023 /PRNewswire/ — For the third consecutive year, peripheral neuropathy (PN) has been renewed for research funding by the Department of Defense (DoD) Peer Reviewed Medical Research Program (PRMRP)’s $370 million fund. In advance of pre-application deadlines, the Foundation for Peripheral Neuropathy (FPN) …
Help Advocate for Government Funding for Peripheral Neuropathy Research What It Is In response to the tireless advocacy and outreach from the peripheral neuropathy (PN) community, Congress designated peripheral neuropathy as a condition in the Peer Reviewed Medical Research Program (PRMRP) in the annual Defense Appropriations Act during fiscal years 2021 through 2023. During that …
Call to Action 2023 – Peer Reviewed Medical Research Program! Read More »
Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute …
At the Foundation for Peripheral Neuropathy (FPN), we like to share with our constituents stories of hope from their peers who are living their best lives, despite the odds being stacked against them. Meet Gil – scientist, writer, avid outdoorsman and FPN supporter – who is another example. This is Gil’s neuropathy journey. We sat …
