Through the generosity of our donors, the Foundation for Peripheral Neuropathy (FPN) was able to support the IMAGiNe study with a $165,000 research grant to fund new patient enrollment for anti-MAG neuropathy. $90,000 of these funds were spent in 2022, which resulted in over 150 new patients enrolling in the study. In 2023, an additional $24,750 was spent, …
The Foundation for Peripheral Neuropathy (FPN) welcomes Dr. David Bennett, MB, PhD, to the Foundation’s Scientific Advisory Board (SAB), effective November 2023. The SAB advises both the Board of Directors and staff of the Foundation on matters related to science and technology relevant to peripheral neuropathy and its research. About Dr. David Bennett Dr. David …
My name is Sumedha, and I am a current high school senior in Maryland. Though I do not have peripheral neuropathy (PN) and do not know of anyone in my personal life who does, I am driven by a desire to understand and helping PN patients directly with this debilitating condition, using my research experience …
Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management, showcasing persistence in the face of adversity. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known …
Introduction to Anti-MAG Neuropathy Anti-MAG neuropathy refers to a rare auto-immune associated cause of peripheral neuropathy (PN). In this case, the person’s own immune system (specifically, the IgM monoclonal antibodies) attack nerve cells required for a healthy peripheral nervous system – resulting in a slowly progressive and debilitating condition. Patients often experience loss of mobility, …
TREATING ANTI-MAG PN – A LOOK BACK AND WHAT MAY BE COMING Read More »
My name is Brooke Gottesman. As a licensed clinical social worker (LCSW) working in mental health since 2004, I am currently in part-time private practice in NY with a specialization in cognitive behavioral therapy (CBT). My practice focuses on patients managing chronic pain. Writing this article is an opportunity to share my story of chronic …
Importance of Peripheral Neuropathy: Since 2019, the Foundation for Peripheral Neuropathy has been actively engaged in a campaign to increase federal funding for peripheral neuropathy research. We had an extraordinary breakthrough in fiscal year 2021, when Congress included “peripheral neuropathy” as an eligible condition for research funding from the Department of Defense’s Peer Reviewed Medical Research …
Importance of Peripheral Neuropathy Recognized in Appropriations Act Read More »
On July 27, 2023, the Senate Committee on Appropriations approved by a large bipartisan vote the Senate version of the fiscal year 2024 Defense Appropriations Act. As it has in the three previous years (FY21-23), the Committee included “peripheral neuropathy” as an eligible condition for receiving research grants from the Department of Defense’s Peer Reviewed Medical …
The Foundation for Peripheral Neuropathy (FPN) is a 100% donor supported 501(c)3 charitable organization. Through research funding, awareness, and patient education, our work advances our mission to improve the lives of patients living with peripheral neuropathy and accelerates the development of treatments, and one day, cures. A Donor Advised Fund (DAF) We view our supporters …
An avid hiker and outdoor enthusiast, Jane shares her most challenging climb – her journey to live with and thrive despite her peripheral neuropathy. Jane recently shared her story with the Foundation for Peripheral Neuropathy in order to help give hope to other patients. When I returned to my favorite spot in Hawaii after several …
