Meet Jason B., a husband, father, supporter of FPN, and an SFN patient, as he shares his journey living with peripheral neuropathy. January 2, 1994, 24 years old, a recent college grad. I was flying from San Francisco to home in San Diego when I felt an unusual, cold yet burning sensation in my legs. …
Living with Peripheral Neuropathy: A 30-Year Journey of Challenges and Hope Read More »
Meet Jeff K., an FPN supporter and volunteer, recent retiree, and resident of West Hartford, CT Jeff K. was diagnosed with peripheral neuropathy (PN) nine years ago, with noticeable issues emerging in the last two years. The initial diagnosis followed back surgery, and his neurosurgeon at Mass General in Boston referred him to a neurologist …
In November 2023, a new discovery was made about neuropathic pain in patients suffering from idiopathic peripheral neuropathy. Using data from the Peripheral Neuropathy Research Registry (PNRR), the Foundation for Peripheral Neuropathy’s research consortium completed an important analysis that led to an important discovery. This research is now published in a renowned research journal. Plasma …
Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management, showcasing persistence in the face of adversity. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known …
Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute …
Small fiber neuropathy (SFN) is a common, yet underappreciated, subclass of peripheral neuropathy. While SFN shares many features with large fiber neuropathy, it has unique aspects in its evaluation and management that warrant particular attention. Q&A with Amro Stino, MD On July 11, 2022, the Foundation for Peripheral Neuropathy (FPN) welcomed Amro Stino, MD, from …
The Peripheral Nerve Society Annual Meeting was held in Miami in May 2022. The Foundation for Peripheral Neuropathy is pleased to be able to provide PNS Meeting 2022 highlights, summarizing some of the clinical studies presented at the conference. Study teams reported on natural history studies and (clinical) intervention trials for peripheral neuropathies who concluded …
“Optimism is the faith that leads to achievement; nothing can be done without hope.” —Helen Keller The Diagnosis I was diagnosed with idiopathic peripheral neuropathy in August 2021. Two years prior to a diagnosis, I kept feeling that my socks were bunching up in my feet. I started buying new sneakers and socks. But …
Vitamin B6 toxicity is known to be a cause of peripheral neuropathy. There is debate regarding the threshold at which intake levels can cause neurological symptoms through vitamin B6. In a 2021 study from the Peripheral Neuropathy Research Registry (PNRR), funded by the Foundation for Peripheral Neuropathy, researchers asked if elevated plasma vitamin B6 levels …
Chuck is a husband, father, grandfather, outdoorsman – and a PN patient who strongly supports the Foundation for Peripheral Neuropathy (FPN) and advocates for his own health and that of others. We chatted with Chuck about his recent adventures and his tips for others who want to follow his example of exploring the national parks. What is your connection to peripheral …
