by Dieter R. Boston Marathon Tragedy: A Day That Changed Everything The television flickered with images of the elite runners and the wheelchair athletes surging forward, the energy of the Boston Marathon palpable even through the screen. It was April 15, 2013, a day etched in my memory. I had watched the runners begin their …
Running Through the Pain: Finding Strength in the Face of Polyneuropathy Read More »
Meet Jason B., a husband, father, supporter of FPN, and an SFN patient, as he shares his journey living with peripheral neuropathy. January 2, 1994, 24 years old, a recent college grad. I was flying from San Francisco to home in San Diego when I felt an unusual, cold yet burning sensation in my legs. …
Living with Peripheral Neuropathy: A 30-Year Journey of Challenges and Hope Read More »
Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management, showcasing persistence in the face of adversity. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known …
My name is Brooke Gottesman. As a licensed clinical social worker (LCSW) working in mental health since 2004, I am currently in part-time private practice in NY with a specialization in cognitive behavioral therapy (CBT). My practice focuses on patients managing chronic pain. Writing this article is an opportunity to share my story of chronic …
An avid hiker and outdoor enthusiast, Jane shares her most challenging climb – her journey to live with and thrive despite her peripheral neuropathy. Jane recently shared her story with the Foundation for Peripheral Neuropathy in order to help give hope to other patients. When I returned to my favorite spot in Hawaii after several …
At 98, Gloria Potter shares her peripheral neuropathy journey. “What nerve!” We have heard that exclaimed over the years, but the meaning was only one of outrage and the actual nerve cells were not considered. Those of us with peripheral neuropathy may well have the outrage because we are experiencing a thoroughly outrageous condition. As …
Meet Margot Marsh; she has been through a lot over the years. She moved many times over her lifetime, mostly for other people. She has been married and divorced, raised children, restarted a career and dealt with long-term chronic pain from peripheral neuropathy. But she will be the first to tell you, if she has …
I’m writing this essay for a couple of reasons: as a way to bring more awareness to small fiber neuropathy (SFN) and explain its toll on me personally. The symptoms of small fiber neuropathy vary greatly person to person. But for me, it is chronic pain. I’ve been in pain ever since I can remember. …
Dana’s Story: My Personal Journey with Small Fiber Neuropathy Read More »
Small Fiber Neuropathy brings two women together in friendship and for a cause Rosy George and Jen Roland were strangers living hundreds of miles apart. Soon after her life-changing diagnosis, Rosy of New York reached out to the Foundation for Peripheral Neuropathy looking for support. She was given Jen’s contact information, a young mom from …
Jen and Rosy’s Story: Two Moms Unite Over Small Fiber Neuropathy Read More »
Gregory meets with FPN! Van Salmans, Lindsay Colbert, Gregory, Tanya Zivin and Nancy Frohman D.C. – San Francisco Fundraiser Supports 30-Million Neuropathy Sufferers and Kicks Off Peripheral Neuropathy Awareness Week May 1-8, 2022 For the first time, a cyclist is riding an electric bicycle (e-bike) cross country over 3,400 miles of Lincoln Highway in a journey …
E-Biking Across the U.S. to Raise Awareness for Peripheral Neuropathy Read More »
