For the first time, we organized Neuropathy Advocacy Day and took our message directly to Congress. On March 18, 2025, staff and board members from the Foundation traveled to Washington, D.C. to speak up for the 30 million Americans who have peripheral neuropathy (PN). Our visit was urgent because earlier this month, Congress passed a […]
Peripheral neuropathy (PN) is vastly under-researched, despite its prevalence. While over 30 million Americans live with PN, the National Institutes of Health (NIH) funded less than $200 million in PN research from its $47 billion annual budget in 2024. That is less than $7 per PN patient. Neurological conditions are now the leading cause of […]
Read More… from Advocating for PN research: the critical need for research dollars
By Stacey Udell, PN patient and FPN supporter The Town of Huntington’s (NY) board meeting, on April 11, 2024, was a truly unforgettable experience for me, as I had the honor of receiving a proclamation on behalf of FPN (the Foundation for Peripheral Neuropathy) for Peripheral Neuropathy Awareness Week. It was an incredibly touching and […]
Help Advocate for Government Funding for Peripheral Neuropathy Research in 2025 Due to the Foundation for Peripheral Neuropathy’s (FPN) advocacy efforts on the Hill, and countless letters from PN patients like you, Congress designated peripheral neuropathy as a condition in the Peer Reviewed Medical Research Program (PRMRP) in the annual Defense Appropriations Act during fiscal […]
Read More… from Make Your Voice Heard: Join the Call to Action for PN Advocacy!
On March 23, 2024, the Senate Committee on Appropriations approved, by a large bipartisan vote, the Senate version of the fiscal year 2024 Defense Appropriations Bill. As it has in the three previous years (FY21-23), the Committee renewed “peripheral neuropathy” (PN) as an eligible condition for receiving research grants from the Department of Defense’s Peer Reviewed […]
Read More… from PN Renewed in 2024 Defense Appropriations Bill
For the fourth consecutive year, peripheral neuropathy (PN) has been renewed for research funding by the Department of Defense (DoD) Peer Reviewed Medical Research Program (PRMRP)’s $370 million fund for FY24. In advance of pre-application deadlines, the Foundation for Peripheral Neuropathy (FPN) is sharing with you the FY24 funding mechanisms, award amounts, maximum direct costs and how to apply. FY24 […]
Principal Investigators Peter Grace, PhD, from MD Anderson Cancer Center, University of Texas, and Cobi Heijnen, PhD, from Rice University, were recently granted Investigator-Initiated Research Awards. Grace received funding totaling USD$3,064,079, and Heijnen received funding totaling USD$165,704. Peripheral Neuropathy Advocacy Grace and Heijnen’s awards were made possible through the Foundation for Peripheral Neuropathy’s (FPN) advocacy […]
Principal Investigator Shailly Jariwala, MS, PhD, of the Henry M. Jackson Foundation, was recently granted a Discovery Award totaling USD$319,151 for her research on a new therapy for peripheral neuropathy. Peripheral Neuropathy Advocacy Jariwala’s award was made possible through the Foundation for Peripheral Neuropathy’s (FPN) advocacy efforts with the Department of Defense’s CDMRP program. Advocacy […]
Importance of Peripheral Neuropathy: Since 2019, the Foundation for Peripheral Neuropathy has been actively engaged in a campaign to increase federal funding for peripheral neuropathy research. We had an extraordinary breakthrough in fiscal year 2021, when Congress included “peripheral neuropathy” as an eligible condition for research funding from the Department of Defense’s Peer Reviewed Medical Research […]
Read More… from Importance of Peripheral Neuropathy Recognized in Appropriations Act
On July 27, 2023, the Senate Committee on Appropriations approved by a large bipartisan vote the Senate version of the fiscal year 2024 Defense Appropriations Act. As it has in the three previous years (FY21-23), the Committee included “peripheral neuropathy” as an eligible condition for receiving research grants from the Department of Defense’s Peer Reviewed Medical […]