In November 2023, a new discovery was made about neuropathic pain in patients suffering from idiopathic peripheral neuropathy. Using data from the Peripheral Neuropathy Research Registry (PNRR), the Foundation for Peripheral Neuropathy’s research consortium completed an important analysis that led to an important discovery. This research is now published in a renowned research journal. Plasma […]
Through the generosity of our donors, the Foundation for Peripheral Neuropathy (FPN) was able to support the IMAGiNe study with a $165,000 research grant to fund new patient enrollment for anti-MAG neuropathy. $90,000 of these funds were spent in 2022, which resulted in over 150 new patients enrolling in the study. In 2023, an additional $24,750 was spent, […]
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The Foundation for Peripheral Neuropathy (FPN) welcomes Dr. David Bennett, MB, PhD, to the Foundation’s Scientific Advisory Board (SAB), effective November 2023. The SAB advises both the Board of Directors and staff of the Foundation on matters related to science and technology relevant to peripheral neuropathy and its research. About Dr. David Bennett Dr. David […]
Introduction to Anti-MAG Neuropathy Anti-MAG neuropathy refers to a rare auto-immune associated cause of peripheral neuropathy (PN). In this case, the person’s own immune system (specifically, the IgM monoclonal antibodies) attack nerve cells required for a healthy peripheral nervous system – resulting in a slowly progressive and debilitating condition. Patients often experience loss of mobility, […]
Read More… from TREATING ANTI-MAG PN – A LOOK BACK AND WHAT MAY BE COMING
Importance of Peripheral Neuropathy: Since 2019, the Foundation for Peripheral Neuropathy has been actively engaged in a campaign to increase federal funding for peripheral neuropathy research. We had an extraordinary breakthrough in fiscal year 2021, when Congress included “peripheral neuropathy” as an eligible condition for research funding from the Department of Defense’s Peer Reviewed Medical Research […]
Read More… from Importance of Peripheral Neuropathy Recognized in Appropriations Act
On July 27, 2023, the Senate Committee on Appropriations approved by a large bipartisan vote the Senate version of the fiscal year 2024 Defense Appropriations Act. As it has in the three previous years (FY21-23), the Committee included “peripheral neuropathy” as an eligible condition for receiving research grants from the Department of Defense’s Peer Reviewed Medical […]
The Foundation for Peripheral Neuropathy (FPN) is pleased that the IMAGiNe study protocol has been approved for publication in the Journal of the Peripheral Nervous System. The focus of this international study is a rare autoimmune cause of PN. It is identified by high levels of the IgM protein in the blood of affected patients, […]
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Peripheral Neuropathy Awareness Week 2023 is almost here! Peripheral Neuropathy (PN) Awareness Week is an annual event, occurring the first full week in May. This year, we are spreading awareness for this devastating condition during a week-long campaign that’s running from May 7 through May 13. We use the week to spread awareness of PN […]
Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute […]
Paula Barreras, MD, neuroimmunology fellow at Johns Hopkins Hospital and Erika Williams, MD, PhD, neuromuscular fellow at Massachusetts General Brigham are receiving the inaugural Clinical Research Training Scholarships (CRTS). Through these awards, FPN is providing $300,000 in peripheral neuropathy (PN) research funding. Identifying Biomarkers and Pathogenic Mechanisms in Sarcoidosis-Associated Small Fiber Neuropathy Barreras will study […]
Read More… from Inaugural Clinical Research Training Scholarship Recipients Announced