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Idiopathic Neuropathy: Q&A

Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute […]

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Inaugural Clinical Research Training Scholarship Recipients Announced

Paula Barreras, MD, neuroimmunology fellow at Johns Hopkins Hospital and Erika Williams, MD, PhD, neuromuscular fellow at Massachusetts General Brigham are receiving the inaugural Clinical Research Training Scholarships (CRTS). Through these awards, FPN is providing $300,000 in peripheral neuropathy (PN) research funding. Identifying Biomarkers and Pathogenic Mechanisms in Sarcoidosis-Associated Small Fiber Neuropathy Barreras will study […]

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FPN Welcomes New Board Member

The Foundation for Peripheral Neuropathy is pleased to welcome its newest Board Director, Dr. Gregory Maassen, PhD, effective January 1, 2023. About Dr. Gregory Maassen Dr. Gregory Maassen is a multimedia, strategic digital marketing, videographer, and (interim) manager. He has over 23 years of experience. This includes 18 years of senior management experience with the […]

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Our Advocacy Work on The Hill

In 2020, the peripheral neuropathy (PN) research community achieved a huge breakthrough. For the first time, Congress included “peripheral neuropathy” as an eligible condition for study in the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP). This secured more than $8 million in grants for peripheral neuropathy research in fiscal year 2021. Our […]

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FPN Funding Contributes $90,000 to IMAGiNe Study for anti-MAG Research

Through the generosity of our donors, we’re able to support the IMAGiNe study with a $150,000 research grant to fund new patient enrollment. $90,000 of these funds, spent in 2022, resulted in over 150 new patients enrolling in the study. The IMAGiNe Study The IMAGiNe study is an international research collaborative focused on patients with […]

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Hereditary Neuropathy and Genetic Testing: Q&A

Hereditary neuropathies refer to a group of nerve disorders that lead to weakness and wasting of the muscles generally below the knees, and in the hands, and that may be passed from parents to children. For several of these conditions, the genetic defect is known, and tests are available for diagnosis and prenatal counseling. Q&A […]

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FPN Welcomes Dr. Sandra Rieger

The Foundation for Peripheral Neuropathy (FPN) is delighted to announce that Sandra Rieger, PhD, has joined the Foundation’s Scientific Advisory Board (SAB). The SAB advises both the Board of Directors and staff of the Foundation in areas of science and technology relevant to peripheral neuropathy and its research. Dr. Sandra Rieger earned a Ph.D. in Developmental […]

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Small Fiber Neuropathy: Q&A

Small fiber neuropathy (SFN) is a common, yet underappreciated, subclass of peripheral neuropathy. While SFN shares many features with large fiber neuropathy, it has unique aspects in its evaluation and management that warrant particular attention. Q&A with Amro Stino, MD On July 11, 2022, the Foundation for Peripheral Neuropathy (FPN) welcomed Amro Stino, MD, from […]

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Anti-MAG Peripheral Neuropathy: Q&A

Anti-MAG peripheral neuropathy (Immunoglobulin M(IgM) Anti-Myelin Associated Glycoprotein Peripheral Neuropathy) is a rare autoimmune variety of peripheral neuropathy. In this type of PN, a person’s own immune system attacks cells that are specific in maintaining a healthy peripheral nervous system. As these cells are destroyed by antibodies, they lose function and create problems in both […]

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CLINICAL HIGHLIGHTS: PNS Meeting 2022

The Peripheral Nerve Society Annual Meeting was held in Miami in May 2022. The Foundation for Peripheral Neuropathy is pleased to be able to provide PNS Meeting 2022 highlights, summarizing some of the clinical studies presented at the conference. Study teams reported on natural history studies and (clinical) intervention trials for peripheral neuropathies who concluded […]

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